‘I came home crying in pain because my joints felt like they were on fire.’: Woman shares long, painful journey to hEDS diagnosis
‘I came home crying in pain because my joints felt like they were on fire…
Jul 6, 2022
lovewhatmatters.com
I have a genetic condition called hypermobile Ehlers-Danlos Syndrome (hEDS), a complex connective tissue disorder that affects many parts of the body. It’s often invisible, unpredictable, and exhausting, not just physically, but emotionally too.Even though I’ve had it my whole life, things changed drastically about four years ago when I badly injured myself during my daily yoga practice (something I’d been doing consistently for three years and deeply loved). For people with this condition, it’s
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I have a genetic condition called hypermobile Ehlers-Danlos Syndr…
12K views10 months ago
FacebookThe Blind Woodsman and Honeybee
Barriers to care: hEDS / HSD Doctors aren’t educated thoroughly on hEDS/HSD and connective tissue disorders 💔 If you’ve been misdiagnosed for years, or told your pain is “all in your head”... you’re not alone. People with Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) face major barriers to care, including: ❌ Lack of provider knowledge ❌ Dismissive doctors ❌ High out-of-pocket costs ❌ Misdiagnosis or delayed diagnosis That’s exactly why we created our Hyperm
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Barriers to care: hEDS / HSD Doctors aren’t educated thoroughl…
1.5K views10 months ago
FacebookWhealth
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hEDS and knee pain in the adult patient
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