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Allison Pullins’ son, James, has lots to say about what Marfan syndrome means to him. Does your child? Whether it means that your daughter is taller than her brother or that your son gets to wear really cool glasses, we have an opportunity for them to play a role in raising Marfan awareness. Simply create a video asking them what Marfan syndrome means to them and then send it to emasciale@marfan.org by January 24 to be included in our Marfan Awareness Month videos in February. | The Marfan Found
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MEDICO MAN ARMY on Instagram: "Good observation by that guy 🔥🔥 Marfan syndrome is a genetic disorder that affects the body's connective tissue, which provides support and structure to various organs, bones, and other tissues. *Key Features: 1. _Tall stature_: People with Marfan syndrome are often taller than average. 2. _Long limbs_: Arms, legs, and fingers are often disproportionately long. 3. _Joint hypermobility_: Joints are often loose and flexible, leading to joint pain and instability. 4
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